Living with a haematological disorder

A diagnosis and treatment of a haematological disorder can affect your life in many different ways. Tell your doctor or Cancer Nurse Specialist about any concerns you have or if you are experiencing symptoms, as these can often be controlled with treatment.

The following organisations provide more information on living with a haematological disorder.

• Northern Trust Macmillan Information and Support Service
• The Northern Ireland Cancer Network: NICaN
• Blood Cancer UK
• Lymphoma Action – Lymphoma
• Myeloma UK – Myeloma
• MPN Voice – Myeloproliferative Disorders
• Macmillan – Myelodysplasia or myelodysplastic syndrome (MDS)
• Macmillan – Leukaemia

Health and Wellbeing Events

The Northern Trust holds a ‘Living with and beyond Lymphoma/CLL/Myeloma’ health and wellbeing event each year. The event comprises a series of short talks by expert healthcare professionals, a story from a patient with a similar diagnosis and representatives from local cancer charities who can introduce you to a range of support services.

People have the chance to talk to the various health and social care professionals directly and to meet other people affected by cancer and their families.

During the pandemic, the events were held virtually, you can find a recording of our 2023 Lymphoma/CLL/Myeloma Health and Wellbeing events on the Health and Wellbeing events page.

To find out more about our health and wellbeing events, contact the Haematology nurse specialist team at Antrim Area Hospital or the Northern Trust Macmillan Information and Support Service.

Macmillan Information and Support Service

Fern House, Antrim Area Hospital, 45 Bush Road, Antrim, BT41 2RL
Telephone: 028 9442 4000 ext 334046 Mob: 077 9584 5435
Email: cancerinformation@northerntrust.hscni.net